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Apr 23, 2025 · Advancing rare disease research is essential for creating meaningful change in the lives of patients and families, in our community. This collection of tools, guides, and expertise will …
Sessions provide attendees, with insights about the latest in rare disease innovations, best practices for advocating on an individual and organizational level, and actionable strategies they can take …
More Resources: Dictionary of Rare Diseases Search for a specific disease in our extensive list of rare diseases for disease-specific information, news, and resources.
When you’re here, you’re part of a globally connected community committed to eliminating the challenges of rare disease. Global Genes is committed to providing information, resources and …
Nov 18, 2024 · At Global Genes, we offer support and resources for individuals with rare disease, as well as advocates and caregivers. Explore our curated collection of resources and more below.
The RARE Drug Development Symposium hosted by Global Genes in partnership with Boston Children’s Hospital is designed to equip advocates with the knowledge, skills, and connections to …
Quick Guide Series RARE Disease Facts These RARE facts show the impact of rare disease RARE List Search for a particular rare disease, and resources connected to the condition Emerging …
With more than 10,000 rare disease affecting 400 million people worldwide, rare is everywhere. Find out just how far rare reaches.
Jun 24, 2025 · Held in Boston, this 1.5-day event will empower the rare disease ecosystem of advocates, researchers, and life science partners for a hands-on, collaborative learning …
For more resources, disease-specific information, and news, search our RARE List- an extensive list of rare diseases and rare conditions. Search Our Full RARE List
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